The Transplant Clinic offers support groups for patients and their family
members currently waiting for a transplant along with those who have already
received a transplant.
The support group for heart and lung transplant patients is offered the
3rd Tuesday of every month from 6:30 p.m. – 8:30 p.m. For more information
please call 414-646-5410.
The support group for liver, kidney and pancreas transplant patients if
offered the 2nd Wednesday of every month from 4 p.m. – 5:30 p.m. For more
information please call 414-646-2550.
Individual counseling
Psychosocial support beyond that provided by the transplant nurse coordinator is available through the transplant social worker, a staff psychologist or psychiatrist.
Donor awareness
Training is open to patients interested in community service projects to promote organ donor awareness. Trained patients and family members form a speaker's bureau and participate in projects at the Motor Vehicle Department, area churches and community organizations.
Patient/family lodging and transportation
Aurora St. Luke's Medical Center is located approximately 1 mile from the Hospitality Inn. This hotel offers reduced room rates for patients and families along with free transportation between the hospital and hotel.
Outside links
UNOS, the United
Network for Organ Sharing.
Patients accepted onto a transplant hospital's waiting list are registered
with the UNOS Organ Center, where a centralized computer network links all
organ procurement organizations and transplant centers.
SRTR, the Scientific Registry of
Transplant Recipients Web site provides all the information currently
available in the Statistics, Reports, and Summary sections of the UNOS
Transplant Patient Data Source.
NMDP, the National Marrow Donor
Program, an organization helping patients through stem cell transplantation.
The Roche Organ Transplantation Research
Foundation is a registered Medical Research Charity whose mission is to
advance the science of organ transplantation by supporting research programs
through operating grants directly allocated to research projects .
TransWeb, a comprehensive
transplant-oriented Web site, which includes current statistics, news items,
donation issues, patient education, and an excellent reference section.
Lifegift's mission is to provide
community benefit by ethically, effectively and efficiently recovering
appropriately transplantable organs and tissue to give the gift of life.
Coalition on Donation is a
not-for-profit alliance of local coalitions and national organizations who
have joined forces to promote organ and tissue donation.
Donor Alliance is a nonprofit
organization that facilitates the recovery and donation of organs and tissues
in Colorado and Wyoming.
Transplant Awareness, Inc. (TAI)
is a nonprofit corporation run and operated by volunteers who are all organ
transplant recipients. Products designed to increase organ donor awareness
(such as T-shirts and license plate frames) are offered for sale.
Transplant Communications, Inc., a
twice-monthly online newsletter providing up-to-the-minute information on
developments in organ, tissue, eye, and bone marrow procurement and
transplantation.
The National Foundation for
Transplants is a national non-profit organization that offers a program of
healthcare and financial support services and patient advocacy for transplant
candidates, recipients, and their families.
The Coalition on Donation is a
national non-profit alliance of national organizations and local coalitions
dedicated to educating the public about organ and tissue donation.
The Kids Organ Donor Educational
Program is an educational program designed to teach students about the
functions of the major organs of the body and the importance of organ
donation.
The Living Bank International is
a non-profit organization dedicated to the enhancement of organ and tissue
donation and transplantation.
AAKP, the American Association of
Kidney Patients, is a national, non-profit, membership-based, voluntary health
organization providing education, support and advocacy services to kidney
patients and their families.
AKF, the American Kidney Fund, is a
national voluntary health organization dedicated to improving the daily lives
of people with chronic kidney disease.
E-Neph, the complete Web site for the
international renal care community.
NKF, the National Kidney Foundation,
is a voluntary health organization seeking to prevent kidney and urinary tract
diseases, improve the health and well-being of individuals affected by these
diseases, and increase the availability of all organs for transplantation.
The American Diabetes Association
is the nation's leading nonprofit health organization providing diabetes
research, information and advocacy.
The American Heart Association
is a not-for-profit health organization funded by private contributions to
reduce disability and death from cardiovascular diseases and stroke. These
include heart attack, stroke (brain attack) and related disorders.
The American Liver Foundation
is the only national, voluntary non-profit health agency dedicated to
preventing, treating and curing hepatitis and all liver diseases through
research, education and support groups.
CLASS, the Children's Liver
Association for Support Services, is a nonprofit organization dedicated to
serving the emotional, educational and financial needs of families coping with
childhood liver disease and transplantation.
The Children's Liver Alliance (CLA) is
dedicated to empowering the hearts and minds of children with liver disease
(pre- and post-liver transplant), their families and the medical professionals
who care for them.
Second Wind Lung Transplant Association,
Inc. is dedicated to improving the quality of life for lung transplant
recipients, lung surgery candidates, people with related pulmonary concerns
and their families, by providing support, love, advocacy, education,
information and guidance through a spirit of service, adding years to their
lives and life to their years.
Organ Transplant Support,
Inc. provides support, counseling, education and informational medical
programs and materials on transplantation. Members include transplant
recipients, candidates, their families and health care professionals.
TRIO, Transplant Recipients
International Organization, is an not-for-profit, international organization
committed to improving the quality of life of transplant candidates,
recipients, their families and the families of organ and tissue donors.
Transplant Buddies is
dedicated to the sharing of feelings and thoughts about the transplant
process.
The National Transplant
Assistance Fund (NTAF) provides guidance and emotional support to
transplant patients by helping families and friends organize, launch and
sustain a fundraising campaign. NTAF also offers grants to eligible
candidates.
Professional organizations
NATCO, the North American Transplant
Coordinators Organization, is the professional society of more than 1,750
transplant coordinators, and is the largest group of transplant professionals
in North America.
AST, the American Society of
Transplantation, is an organization of 1,300 transplant professionals
dedicated to research, education, advocacy and patient care in transplantation
science and medicine.
ISHLT, the International Society for
Heart and Lung Transplantation, has over 2,200 members from over 45 countries,
representing over 10 different disciplines involved in the management and
treatment of end-state heart and lung disease.
ITCS, the International Transplant
Coordinators Society is an organization of transplant coordinators, both
clinical and procurement coordinators, who provide a major portion of the
infrastructure in which organ or tissue donation and transplantation occur.
